The sea of tears, feelings, nerves and the search for blame
Vasilisa was born on 15 April 2010, on the third day we were put for audioscreening. The result was negative. Although they said that it still does not mean anything, but already then the heart prompted - something is wrong. At 3 months we were sent for examination. The doctor checked and said: "There is no inflammation." And then I did not understand anything, I ask: "Does she hear?", And she silently shaked her head. I remember dressing Vasena, and the tears roll, so I could not stop. This doctor was the first I heard from about operations that restore hearing.
We were sent to the VSWR. My husband asked me to write him sms with the result on a five-point scale. And so, after leaving the hospital, I sent him 0. A sea of tears, feelings, nerves and a search for the guilty. It was terrible!
At 7 months we put on the SA. It was not easy, everything was whistling, we often altered the inserts, Vasena took them off, but we still put on. Daily lessons, we thunder, knock, throw covers on the floor, in general, seemed like the orchestra has settled in the apartment. By the year of age we managed to get a dozen of simple words, every word - a colossal work.
We decided to CI and do not regret it
After a year, we began to think about cochlear implantation. We very much doubted, but the guardian said that we are only losing time. Huge gratitude to her! In 1 year and 7 months we underwent surgery. And, not having returned from the connection, we decided that we would definitely do the second ear! That's the difference between CI and SA. Progress did not just go ahead, it flew. We stopped recording because we did not have time. In 2 years and 2 months we made the second ear!
We have passed the analysis on genetics as we did not find the reasons for such diagnosis. We found it - connexin 26. I thought that I would not decide on the second, because the probability of having a child with the same diagnosis is 25%, but over some time I changed my mind, because there is CI, and it's wonderful.
On 19 January 2015 Evdokia was born and waited for screening with trembling. When they told me that everything was fine, I burst into tears. She told the nurse about my situation, and she offered to do the test again. And the test does not pass! How did this test pass for the first time? I do not know. I believe that God gave me a moment of unforgettable happiness, and I am grateful to him for this! And here we have a second daughter with the same diagnosis. Dunyasha is wearing the hearing aids from 2 months, at 9 months we underwent surgery. She keeps on talking all the time!